UPPER LIMB LYMPHEDEMA 27 (ULL27): DUTCH TRANSLATION AND VALIDATION OF AN ILLNESS-SPECIFIC HEALTH-RELATED QUALITY OF LIFE QUESTIONNAIRE FOR PATIENTS WITH UPPER LIMB LYMPHEDEMA

Abstract

The health-related quality of lifequestionnaire for lymphedema of the upperlimb (ULL27) was translated into Dutchaccording to international guidelines andvalidated. Eighty-four patients with lymphedemathat occurred after axillary surgery forbreast cancer and subsequent radiotherapy,chemotherapy, or hormonal therapy, completedthe translated version of the ULL27 and theRAND36. Severity of upper limb edema wasmeasured by specialized physiotherapists. Theinternal consistency of the domains of thequestionnaire was good as were the convergentvalidity and discriminant ability. Upper limbvolume and the domains of the ULL27 werenot correlated. The Dutch translation of theULL27 questionnaire has good internalconsistency and validity but further researchis needed to determine its responsiveness.